Human Fallibility

Face black and white broken glass

I don’t think anyone really wants to die, even though we sometimes say those words out loud.  Although there have already been a few moments within the past few weeks that I felt as though I was ready to end the pain and suffering.  Did I really want to die?  Of course not.  I just wanted the pain to cease or at least decrease to a tolerable level.

I know that my readers may just prefer to get only the non-personal aspects within this journal… this journey beyond the edge of terminal lung cancer, instead of reading my ramblings about the emotional aspects of this horrible illness.  Sure… it’s about the pain… about the loss of air capacity… about the weakness… about the pulmonary arteries and bronchial tubes being crushed by the tumors… about how it feels when cancer eats its way into the bone… about how the medications they give you to… umm… “keep you comfortable”, add to your misery with their additional side effects.  But to me… the biggest struggle… is with the emotional part of it all.  I promised at the beginning of this journal to ‘tell it like it is’ and I will always make a good attempt to do just that.  And ‘that’… includes the emotions involved with facing death.

Why would anyone choose to document themselves dying?  I would think it to be a very strange and unusual thing to do.  Knowing that you’re dying with nothing left medically to do for you to find a cure or even the ‘hope’ that there is something somewhere that can slow the growth and spread of the tumors is really quite a personal thing to go through.  I admit… along with everything else… it does get more and more difficult to write along with everything else that becomes more difficult.  My poetry blog has suffered greatly just as this one has.  I haven’t done a very good job of keeping my posts regular and up to date.  But I’m trying.  Severe pain definitely has a way to alter your thought process.

Writing is one of the few things that keeps me going… makes me feel as if I still have something of interest to say… if only for my own benefit… a reason to reach for tomorrow.  I know that some of these posts can get somewhat boring… but life… or in this case… ‘death’… is not always a pleasant and exciting experience.  Maybe I’m just weird (well… I really think that question has already been answered), but have you never been in a quiet room with all kinds of things passing through your mind when suddenly… something inside your mind says… “I wonder what it’s really like to die.”  Well… probably not.

Is this the hell everyone talks about?  Some people are lucky enough to die in their sleep, although I suppose that wouldn’t be considered lucky by those who cared about them.  Some have to live with extreme pain and suffering and to be honest… it’s hard not to at least have a thought or two about your own life, how you lived it, how you treated others… and if there is something within those thoughts that might have caused you to deserve the pain and suffering for some reason or another.

Summing up all the chaos and trauma.  I now weigh 108 pounds.  The loose skin on my body has sunken and collapsed into the spaces between the bones where the muscle has deteriorated… nearly wrapping itself around each individual bone to the point of literally being able to see my entire outer skeletal system… with plenty of sagging skin remaining… in a most graphic display of ‘what gravity does to the human body’.  Wow… is that a rude thing to see in the bathroom mirror early in the morning.  I scare myself.  I scare small children and probably a number of adults.  Talk about emotions flowing…

I try to keep as much of myself hidden as I possibly can.  However… at this point in the journey… that is impossible to do.  Other people have to help you along the way.  When you’ve always been extremely independent throughout your whole life, I feel guilty every time I ask for something.  EVERY TIME!

Here’s my Tuesday.  I awoke at 2:25 in extreme pain.  I took a dose of liquid morphine and unsuccessfully tried to get comfortable.  I turned on the tv in an attempt to find something that would make me smile… there was nothing.  I finally dozed off around 4 a.m. and woke again just before 5.  I was in excruciating pain, unable to swallow even water without great difficulty and running a low grade fever.  Not particularly a great start to the day.  I remained in that condition through the entire day and night.  My hospice nurse came by around 10:30 a.m. and asked the same questions she always asks.  I told her my throat had gotten worse and that I was having a very hard time swallowing… even water. They gave me an antibiotic for thrush after I cautioned them about those that affect my heart.  Sure enough… what they gave me had a big side effect warning about affecting the heart rhythm.  The throat problem continued all day long.  I had virtually nothing to eat on Tuesday.  I had a small amount of chicken noodle soup broth… couldn’t swallow the noodles.  That night I tried drinking a small glass of milk and managed to get maybe a couple of ounces in me, but it wasn’t easy.

Update:  I haven’t been able to eat food since Tuesday.  Ice cream, pudding and water.  My daughter and son in law picked up some popsicles for me and they feel wonderful on my mouth and throat but are still difficult to eat because of the sore swollen lips.  The nurse came on Friday, told me to take the medicine they gave me for Thrush because the consequences of not taking it are far greater than if I do.  So I took it (crushed) on Friday afternoon.  It did affect my heart… more arrhythmia, shortness of breath etc… But so far, obviously… it hasn’t killed me.

I was having a bit of a better evening than usual until about 8 p.m. when I started having severe chills.  I crawled under the covers with a hoody over me, a heating pad, and an extra blanket.  My daughter gave me liquid morphine and some liquid children’s Motrin because that is all we had for fever that I can swallow.  I finally quit chilling around 9 and turned out the lights.  My temp actually continued to rise until around midnight but the chills had stopped.

This morning I’m weak, still the same horrible symptoms… but the fever has decreased to a more tolerable level.  I just took another crushed med for thrush that affects the heart but it seems I have no other choice.

I know this post is far too long but I would still like to add some very interesting ponderings  that have been wandering my mind over the past few weeks… things I suppose I never would have pondered if I were not looking at death up close and personal.  I did however write them in semi poetic form and hope you will take them to heart… Some day you may be asking yourself these very same questions.

Ever had a tale to tell…
But couldn’t tell it?
Ever had a soul to sell…
But didn’t sell it?
Did it swell inside your mind
To blind your sense of reason?
Did it dwell inside your veins
Till it pained your state of mind?

Ever want to know the truth…
But couldn’t find it?
Ever looked within yourself…
Then hid behind it?
Did your secrets feed the beast
Just to feast upon the shame?
Did you live your hearts desire
To acquire the living flame?

Ever see a miracle…
But couldn’t seize it?
Ever find the perfect time…
But couldn’t freeze it?
Did you grasp the sharpened steel
Just to deal with secret pain?
Did you wonder what is real
Just to feel the touch of rain?

Ever faced reflection’s truth…
But then erased it?
Ever gazed in mirrored glass…
But couldn’t face it?
Did you lie to thine own self
Just to pine in perfect ruse?
Did you look the other way
To portray the blameless muse?

Ever ponder “Who am I”…
With introspection?
Ever wonder “What is life”…
With no deception?
Did you douse the candle’s flame
Just to claim your wounded pride?
Did the writing on the wall
Scrawl the secrets that you hide?

We cannot dwell on human fallibility
For our world does not exist within perfection
Imperfect as it seems we find what’s beautiful
When all we have to share is our affection

Have a most beautiful day and thank you for spending time with me…

Michael33

Funny How Things Change

Funny how things change.  It’s strange for me to wake up in a big city 300 miles from where I have watched the dawn bloom every day over the past 30 years.  After all, I struggle to walk, struggle to shower, struggle to breathe, even struggle to laugh.  So why would I want a road trip, knowing that I was going to be in high pain through the whole ordeal?  The simple fact is… I really had no choice.  My oldest daughter and her husband very graciously invited me to live with them in their home, to take care of me as this horrible illness progresses.  It takes a great deal of time, space, compassion, and most importantly… love.  It’s not a pretty thing to experience.  My youngest daughter lives in the town where I used to live and is taking care of getting the house ready to sell and sorting through some of the thirty plus years of accumulated… umm… well… junk.  I’ll never be able to express my appreciation of them in an appropriate way.  But I know… they know.  The road trip was quite painful but I made it.

So… about the update of my progress… umm… I mean the progress of the illness… it seems to be progressing far faster than I had hoped.  Of course, today… I have nothing to go on except the increase in pain and the more debilitated I have become over the past few weeks.  I contacted hospice in my new city and the first representative came by to evaluate me and to remind me that I was dying.  They shouldn’t do that.  I’m fully aware of my own situation.  The next day two nurses and a social worker came by to ask me a million questions, see if I had a pulse, make sure I would sign a DNR form and to remind me that I was dying.

Here’s something very entertaining for all of those who are trying to be safe during this pandemic or whatever it is.  I was hesitant to put this in my post, but I think people should know… especially elderly, dying folks and care takers… Not everyone thinks clearly… even when they are a medical professional and trying to take care of someone dying of cancer.  So… I won’t name any names or agencies… but… the nurse… wearing a mask… no gloves… was checking my medications in the bottles… when she opened one of my pain meds up and poured them into her hand to see how many pills I had left…  Yes… you read that correctly… poured them INTO HER HAND… every pill in the bottle. This wasn’t long after telling us that she had recently gone to a wake for a woman who had died of Covid19.  Wait…. What?  I already have more complaints pilling up rapidly so… stay tuned. 

I must admit that I am comfortable in my new environment, although I dearly miss my other daughter, my granddaughter, my home, my normal daily routine and of course… most of my kitties  with the exception of the four that we were able to bring here with me.  The sad part is, we lost Ollie to a very serious but unknown illness.  The Vets couldn’t even figure out what was wrong with him nor why he died from it.  He is tremendously missed.  One of the three remaining kitties was adjusting well to his new environment until we lost Ollie… now… he seems to be mourning and missing his brother as much as we are.  

Everything has changed and I’m not good at changes in my life of any kind.  My daughter and son-in-law have treated me wonderfully and I have absolutely no complaints, which… if you’ve kept up with this journal… you already know that I’m not one to keep silent when it comes to complaints.  There’s just been too many changes in my life in far too short of a period of time.  But… after all… I’m dying… already surpassing all prognostications of my longevity.  It sadly becomes a reality in everyone’s life that suffers from incurable, advanced, stage four lung cancer that living alone is no longer an option. 

My mind is in a state of chaos that I have never experienced and there are those times when I do wish for the suffering to end.  I’ve known others that have committed suicide because they hated their lives, or accidental overdosing on drugs or yes… even because they were so very ill and grew too tired to fight the suffering.  I’ve known those that have attempted unsuccessfully to commit suicide and are quite unhappy with the fact that they failed in their attempt… even getting angry with someone dear to them for preventing them from dying.  I once had a friend… a next door neighbor… an ex-Tulsa, Oklahoma detective that showed me pictures of crime scenes where people had committed suicide… (why he had the desire to show those pics, I’m not at all sure, but trust me here… you don’t want to see them).  However, he showed me the ones that were very successful in completing their goal and told me which ways were the most likely to end a life.  I know how to do it, but I would never do so.  The main reason I would not is because I have this weird idea in my head, although I have no evidence of facts… that we come here as human beings to live our life on earth to somehow perfect our souls… to become a better human being, to learn to love instead of hate… to learn peace instead of war, to treat all human beings as if we are all one… and if we cannot endure our circumstances in this lifetime and end the evolvement of our souls by committing suicide… that we have to return to earth over and over again until we learn how to love all of God’s creatures and have the ability to express that love with our words and actions in our everyday lives. 

Believe me… I think I have experienced quite enough suffering and perfecting of my soul and I certainly do not want to have to come back and go through it again.  I paid attention to and have rolled around in my mind over the past year… everything I have done that was not perhaps the best choice I could have made… I have dwelled over and over again on every other soul that touched my life and everything I have done in the past that might have hurt another.  I sometimes feel as though I deserve the suffering.  The things that wander through my mind… knowing that my life on this planet is coming to an end… are amazing… and it is not always a ‘good’ amazement.

For a couple of days last week and especially for several hours… I thought that I was either living my last hours on this earth or… at the very least… my last hours to remain out of hospitals or nursing homes.  I passed out twice (while attempting to walk) within a short period of time and just c o u l d  n o t  f u n c t i o n.  In exceptional pain… I was ready for the needle to put me away.  I asked my daughter to take me to the Vet… they euthanize their patients much easier than humans.  I think she said no, but I don’t really remember.  So… obviously I did not croak.

They have increased my meds dramatically.  I hate it.  If I take what they want me to take… I just sleep and do nothing else and still have severe pain.  If I take less of them in order to remain conscious and able to converse… the pain is naturally worse… but at least I can feel almost human.  I’m having to constantly weigh the pros and cons and at this moment… I hurt severely… but I’m sitting up in bed and writing… one of my very favorite and relaxing things to do.  My very own mental health program… and if I go onto WordPress… then I have my very own support group to go with it… and I thank all of you with all my heart! 

I’ve stopped taking my heart meds because my BP has been running low even without taking it.  Some of the more recent readings are in the area of 90/60.  Yesterday however it was 112/68.  Actually… with the exception of thyroid meds, the only meds I am taking are from hospice.  Pain meds and poop pills.  Have to take the poop pills to counter act the side effects of the pain meds.  Isn’t modern medicine delightful?  My weight has dropped to 115… that’s nearly 65 pounds down from what I weighed last November.  I have actually become very scary to look at… I look like I should not still be living.  I look worse than most of the people they show on TV where they are asking for donations to help starving people in other countries… just bones wrapped in skin… and my whole body is crooked.  It’s hard to explain, but with nothing but skin and bones (literally)… and ribs pushing out on the side… I just look twisted.  At least now my body matches my mind.

To my complete surprise… the VA is looking into installing a chair lift on the ten stair flight that I must climb in my attempts to travel from the kitchen and living room areas to my room and to the bathroom.  As I become weaker, those stairs seem to get longer and steeper. 

The bones on the right side of my body, (same side as the multitude of tumors) are deteriorating rather rapidly.  I have no muscle left anywhere.  Muscle tissue is virtually nonexistent and its support of the bones and joints is fading quickly.  The VA always takes its time, especially on projects like installing chair lifts… I hope they can do it in the very near future or there will have to be another major change in my routine.

I’m very dehydrated.  My tongue sticks severely to the roof of my mouth.  I have trouble swallowing anything… food, pills… sometimes even choking on water.  I’m wobbly when I walk… my hands shake… in fact… I seem to be shaky all over… my knee and hip on the right side don’t seem to want to walk another foot or to even stand up from a sitting position.  Yesterday I must have wobbled at just the wrong time because I bumped against a metal wall fixture holding keepsake plates and the whole thing fell to the floor.  I suppose you can assume the results.  I can’t help but feel so, so terribly sorry.  I will have to make myself more aware of close surroundings while I’m walking umm… stumbling through hallways.

I’m running fever off and on lately.  With the additional facts that I have more congestion that I can’t cough out… excessive pain closer to the center of my chest that doesn’t ‘appear’ to be heart related… (maybe)… although my heart has been acting up a lot more and beating much faster than usual… and more difficulty in breathing… are very familiar symptoms to me as being pneumonia.  I don’t know if hospice will do anything to help me out with that or if I will have to go to a walk in clinic to obtain an antibiotic.  They profess to be here to make my quality of life as good as they can.  The nurse should be coming to see me soon, but I’ve had no contact with them for a week, so… who knows.

Update of the update… the nurse came yesterday… ordered meds I needed and added an antibiotic and an expectorant to treat the pneumonia and changed some of my meds to liquid because of my difficulty in swallowing.  My lungs and breathing have been quite noisy the past few days, so he didn’t have any problem with ordering what I need to treat the pneumonia and help get rid of the fluid. 

This morning I again struggled to breath.  I had to sit down and rest a minute after feeding the kitties… again after brushing my teeth… again after my shower that I wasn’t sure I  was going to be able to finish.  I took my oxygen level and heart rate and my pulse was 125 after relaxing on the bed for a few minutes.  That’s nearly twice my normal heart rate and since I was not really doing anything strenuous… it is a bit concerning.  After a short investigation… it seems that one of my pain meds can cause increased heart rate.  Imagine that… medicine you need actually causing you harm…  Yes… that was sarcasm.

Okay… I’m going to shut up for now.  I’ll do my very best to keep you updated on the pneumonia and other various situations I seem to be encountering these days.  I thank all of you for standing by me through this journey.  I wish you wellness… happiness… and a most beautiful day.

And now… I’m going to join Bella in a nice peaceful nap… I hope!

Bella nap

Michael33 

Learning to Die

Learning to die 3

I’m having a little trouble trying to learn how to die.  It’s really not as easy as it may sound from a distance.  Just what is one supposed to do, how is one supposed to act, what things should one say who knows that they are dying and all the medical professionals around him confirm that belief.  I’ve had visits from a nurse that enrolled me in hospice as an outpatient.  She asked about a million questions and took my vital signs.  She gave me no direction nor clues into what may be to follow.  I guess I’m on my own as to how to handle my own death.  It’s truly a very strange place to be.  I don’t like it here.  Even if I had a time machine, I’m not sure if I’d go backward or forward in time.  I do know that I wouldn’t want to go through all this again and at this very moment… forward in time sounds pretty soothing… though a little bit of quality time with my children before I reach the point where quality is no longer an issue would truly be a wonderful thing.

A couple of days after the nurse visit, I was visited by a minister and a social worker.  That was an unusual visit.  Uncomfortable so to speak… it seems more uncomfortable for them than for me.  In my registration, I told them that I wasn’t into religion as such, but that I was a firm believer and that I was deep into the spirituality aspect of all that our beautiful universe so freely offers to us. There was a very long, uncomfortable time of complete silence, while both of my visitors were looking off into space nodding their heads in the affirmative as if either agreeing with me… very confused by my comment… or agreeing with one another that I was totally insane and should be locked up somewhere.  Whatever their thoughts… neither of them expressed them to me.  The minister prayed for me anyway… sort of… it was more of a save the world prayer and about the coronavirus than anything else.  I appreciated it anyway.  Prayer never hurts.  I said I wasn’t into religion… I didn’t say that I never prayed.

I guess the one thing that came from the hour long visit that was maybe a bit important was this… the social worker asked if I had a plan for when things get worse.  I told her I did not.  I told her that if I was able to find homes for my many rescue cats, that my daughter and her husband had graciously offered to move me in with them in Kansas City while trying to help find homes for God’s little voiceless creatures that reside here with me.  I think that would be a very good idea… at least for me… can’t speak for my daughter and her husband.  There are so many unpleasant circumstances living with someone you care deeply about, who you know is dying.  As for my plan… I told the social worker I had no plan because I don’t know what is available to me.  Evidently she didn’t know either because she had nothing to offer beyond what I told her.

A few days after that I was visited by the nurse that will be my regular nurse and he was accompanied by a second nurse… I suppose training or something.  He asked another million questions, many the same I had already been asked… took my vitals… talked to me about pain meds because I don’t like taking them and not being mentally alert when I do, especially while living alone.  He told me to cut one of them in half and try that.  I told him that I didn’t think you were supposed to cut extended release tabs in half and he assured me that it was alright and the nurse with him agreed.  They said that cutting them was fine… just don’t crush them up.

A few minutes after they left, I cut one of the tabs in half and didn’t like the way the powder inside was falling out of the coated outside.  I didn’t take it.  I Googled it instead… and on nearly every site I checked… it said DO NOT CUT, CRUSH, OR CHIP.  So I called the hospice number and asked to speak to a different nurse.  They connected me with the nurse manager and she said that she would check it out and call me back.  She checked it out, called me… and said DO NOT CUT those pills and that she would inform my nurse.  I suppose he might be a little disturbed by my questioning his expertise… however… those web sites also said that taking the pills cut or crushed may cause fatal respiratory depression.  I don’t think I need that in this moment.  He also told me to stop taking my cholesterol meds and my thyroid meds.  What?  Is this guy trying to kill me off before the cancer gets its chance?  I don’t know about stopping the cholesterol meds but stopping the thyroid meds would put me right back into all the symptoms of hypothyroidism that I was experiencing before the doc found the problem.  I’m weak enough without adding those symptoms back into the situation.  Does this nurse want me to be more miserable than I already am?  Does this nurse even know what the hell he’s doing?  He came back yesterday and apologized for the pill caper.  He was also an hour and a half late for our scheduled appointment.  He first acted like he didn’t know he was supposed to be here at 9am.  Then he said that he got tied up on a conference call that lasted too long.  Excuses, excuses.   I don’t think Hospice and I are getting off on the right foot. 

My symptoms are basically the same as my earlier post except they continue to worsen a bit each day… especially the pain and recently… the coughing up of blood.  To be a bit more descriptive here… I can feel it when the blood begins to gather in my throat.  I can taste it in my mouth and my lips get slightly sticky.  I can’t always cough it up… but I’m nearly always aware that it is happening.  I’m sure you’re not going to find too many patients suffering from cancer… writing about their experiences… that are willing to describe in such detail certain symptoms that sometimes accompany cancer… at least lung cancer.  Some of you probably wish that I would not be so descriptive either… but, as I said from the beginning of this journal… I will tell it like it is and if you don’t want to read it or know about it… well… “Don’t”.

Wednesday morning when I got out of bed to start my day, the right side of my chest felt a lot of pressure.  When I tried to breathe deeply, it felt as though my lung was too full to allow any air to fill it.  It’s a very tight, heavy feeling… kind of like carrying around a sand bag in my lung.  I’m guessing that more of the semi collapsed lobes have collapsed even further, or the tumors are cutting off the air or perhaps… that lung is filling up with fluid.  No way to know at this point.

I know that many of you who read this journal have experienced great pain in one form or another.  Those who have been fortunate enough to have avoided that aspect of life would not understand just how debilitating severe pain can be.  I can’t do anything for more than 5 to 10 minutes without sitting down or lying down to try to relieve the pain before attempting to finish what I started… (picking up and putting away things, laundry, dusting, taking care of kitties… attempting to prepare food… just about anything that makes me bend or stoop or stand for very long).  I can only sit in this chair and type for a few minutes at a time because of the severe pain caused by the tumors gnawing into my rib cage.  Trust me here… it is excruciatingly painful.

The VA called on Tuesday and told me to come in for blood work.  I’m not sure why all of a sudden they want to do blood work unless they have to do it to complete my over the phone yearly exam.  I didn’t question it.  Anyway… I’m glad that they are checking it… I’m a curious person. The results came in and the VA doc said that… other than having very low blood counts… a severe lower abdomen hernia and dying of cancer… I’m healthy as a bear.

So in the meantime I’ll be hobbling along attempting to learn how to die.  I guess it would be hard to find someone with experience of that to help steer me in the right direction, but should any of you have some pointers on the subject… I’m open to suggestions.  Maybe I’ll visit the library and ask the person at the information desk if they have any ‘how to’ books on dying… Hmm… or maybe I shouldn’t.

Until next time… I’ll be wishing you all a beautiful day and exceptionally good health.

Michael33

 

Decisions… in Black and White

Decisions 2

First of all… my sincerest apology for waiting so long to update this journal.  It has been an extremely heart wrenching few months.  I have not been able to think clearly nor to write anything about what has occurred in my life so far this year because the biggest and best part of my soul has been taken from me.

How do you start writing about something so deeply personal that you can’t begin to gather the thoughts that might in some strange way… explain how you feel?  Isn’t that what a journal is supposed to do… explain what’s going on in one’s life?

I’ve attempted to leave those I care very deeply about out of this journal all together.  After all, I started this writing in order to document my journey through time and space while dealing with various stages of cancer with heart disease as a complicating factor.  I didn’t want to infiltrate the privacy of those whom I care so much about.  However… I must say here that my whole life changed forever in the wee hours of the morning of April 3rd… I lost the love of my life… the best friend I could have ever dreamed of… the one who “always” stood by my side, the one who showed me day after day after day… what love really is.  After her long struggle and suffering in an attempt to just… breathe… the world lost a beautiful part of itself.  She showed me what a compassionate, caring human being is all about.  She made me a far better person than I ever was or ever could have been without her.  She taught me that we are all ‘one’ in this world and if everyone would just realize that… our world would be a much more beautiful and peaceful place to dwell.  I will never be the same here without her.  Life can sometimes be quite short… or so it seems… but love… well… love is forever.

Yes… to answer what some of you are asking… she also had lung cancer… as well as additional  serious pulmonary diseases and a very rare autoimmune muscle and skin disease.  She was already in a serious state of weakness.  She really didn’t stand a chance in her attempt to survive cancer.  But, one thing I heard straight from a doctor’s mouth was this… “the chemo is what destroyed her lungs.”  I suppose he was perhaps just thinking out loud and didn’t really intend to say those words in front of anyone else… but I believe that to be the truth.  Please… if you find yourself in a similar situation of needing chemo… think about it very, very seriously… ask questions… find out about options… and if you are already in a weakened state of being…that chemo crap can and will kill you.

Sorry… I had to express my true state of mind before bringing you up to date on myself… which seems so trivial at this point.  Ironic, isn’t it… that I have wandered these pages for about six years… battling cancer… and yet… the love of my life passes before me?  She always said that she wasn’t going to stay here without me… and so… she didn’t.

I will tell you things in this post that perhaps should not be written or spoken to certain people, but I must keep this journal honest and express my deepest and truest feelings at this point of my journey.

I postponed my latest treatment because of the stress and distress that was going on when it was scheduled a couple of weeks ago.  I postponed a CT scan for the same reasons.  I was supposed to have the scan to see if the immunotherapy was working.  Since I already had a fairly good idea that the treatments were not working, I wasn’t much concerned about the scan or the treatment.  The pain level that I have been experiencing for many weeks now, continues to worsen.  The docs and nurses all have the nerve to ask me to put a value of zero to ten on that pain.  What I want to tell them is that the pain has reached the level that I might just pull their fucking heads off and stick them up their asses if they ask me again to put a number value on the pain.  They are the ones that have told me over and over again that advanced stages of lung cancer are extremely painful.

Well… I’m there.

So… last Monday I went to have the CT scan and for blood work to precede my treatment scheduled for Tuesday morning.  On Tuesday I had an appointment with the oncology doc before treatment time to discuss the results of the scan.

Her first words… “How are you feeling?”  What?  How am I feeling?  Really?  I’m in excruciating pain… I’m coughing up blood… I look like a starving human being from a third world country… I’m too weak to even do simple house work most of the time… and I just lost the love of my life… you already knew all of this… and you ask… “How are you feeling?”  What I wanted to say was… ‘come home with me and spend a couple of days inside my life doc… I don’t think you’ll ever need to ask me that again.’

I knew the treatments weren’t working because of the increased pain level.  Trust me… I’ve endured a lot of pain in my life but this is the greatest physical pain I have ever experienced.  Mainly located in the right upper side of the rib cage… from about an inch below the arm, extending about seven inches down the right side is the worst of the pain.  However, that pain radiates around to the back beneath the shoulder blade and around the front to the sternum.

I had told those around me that it felt like the tumors were growing into the rib cage.  As it turns out… they are.

Following the short discussion of ‘how I felt’… the doc said… “Your scan was not good.  The medication is not working.  The tumors have increased in size… they have infiltrated the right side of your rib cage.  That’s why your pain is so severe.”   I asked, “So… where do we go from here?”  She replied that we could do chemo… (using the exact same drugs that just finished destroying the love of my life)… try to find another immunotherapy drug that might slow the progress of the cancer… or hospice.

Hospice… Hmmm… so… these are my choices… I just smiled.  She smiled back and we both knew what my answer was most likely going to be.  She told me to think about it and to call her next week and let her know my decision.  She then added… if you decide hospice, I will get things set up for you.

How about this doc… I’d rather die against the curb, homeless under a bridge than to go to hospice.  Yes… those of you thinking that I am a bit bitter and opinionated are exactly correct in your assumptions.  I know that it may truly become a necessity and I will have no other choice. I’m getting very close to that point in time.  Everything I do… hurts.  I hurt 24 hours a day every day.  It’s gotten very, very old.  I’ve finally reached that point where we as human beings… just don’t have the will to fight it any more.  They’ve showered me with opioids… which I truly despise, but evidently… they are the drugs of choice by the health care profession.  I’ve tried everything they’ve sent me… none of it so far has worked to even lessen the pain to a tolerable level.  I received a new prescription a few days ago, but I have felt too weak and nauseated to even try it.  I must confess that I have tried medical marijuana recently with the approval of all my current docs.  Some strains I have tried don’t help in any way… some make me too sleepy to function in any capacity… but I have found a couple of strains that have actually given me some sort of relief.  They relax my body (which always helps at least a little to ease pain) and relax my mind to the point where I almost….. “Almost”….. don’t give a shit.

Here’s the brief summary of the scan:

Large right hilar mass significantly compressing the right lower lobe pulmonary artery at the hilum as well as compressing the pulmonary artery of the right middle lobe.

Multiple calcified granuloma in the spleen.
Significant mass progression since the PET scan.
No definite hepatic mass.
Metastatic involvement of the lateral right fourth rib and lateral right fifth rib with adjacent chest wall mass.
Calcified granuloma medial left lung base with the left lung otherwise clear.
Progressive nodular areas in the periphery of the right mid and lower lung.
Degenerative changes lower cervical spine.

There it is… in black and white.  Not a pretty picture.  Not a pretty prognosis.

So… for this moment… I have chosen to procrastinate.  Check out what home hospice has to offer that the VA or Medicare will cover at 100%… I’ll be sure and let you know on that one.  I will have to phone my oncologist and inform her of my current… perhaps momentary decision.  I will have to call my pulmonary doc and let her know what I’ve decided about her suggestion… she wants to do a bronchoscopy to determine if the bleeding is coming from the tumor pressing against the wind pipe and possibly remove enough of it to stop the bleeding.  Otherwise… it will continue to get worse.  However… that procedure does nothing to stop the cancer and from all that I have read about that type procedure… it can cause the cancer to spread even more profusely.

Where I go from here… well… it’s very uncertain in this moment, but then… all of life seems to be a bit uncertain.

Namasté

A most beautiful day to you all.  Stay well!

Michael33

First Immunotherapy Treatment

I had a journal entry nearly ready to post but didn’t quite get it finished before having my first Keytruda treatment.  It was a scathing journal entry about the emotional state suffered by so many having to endure terminal illnesses and extremely critical of those who promise you help in one form or another but never follow through.  I may still post it in the near future… there are some who will not be happy with what I have to say, but sometimes… it just needs to be said.

In the meantime… I will bring you up to date on my current unwell-being and the first immunotherapy treatment.  I arrived at the clinic around 7:45 and checked in.  They told me to have a seat in the waiting room.  They came into the room to have me sign insurance papers for the treatment, but they had the wrong insurance.  Not off to a good start.

However… it wasn’t long before they came and got me, leading me to a treatment room well down the hall but right across from the nurse’s station.  As I followed well behind the fast walking nurse to my room, I observed several others receiving treatment in other rooms, all of which were sitting in recliners… some eating and drinking… some appearing to be asleep.  When we reached my room, they told me to climb up on the bed.  What?  I thought I was going to be sitting in a recliner, I said rather jokingly.  The nurse responded by saying, they want you in the bed for the first treatment in case of serious reactions.  They watch you very closely on the first treatment.  Not off to a good start for someone already having serious doubts as to whether to have the treatment or not.

They asked a million questions including my date of birth about 50 times.  They told me that I would get tired of them asking my dob but that is how they make sure you are alert and thinking properly.  Not off to a good start.

After they got me hooked up to an IV with a saline drip and the Immuno drug hung on the IV rack, they call for a verifier.  The verifier comes in, checks who you are, if they have the correct drug ready to go and… yes… your dob.  Everything was verified.

They started administering the Keytruda and said it should only take about thirty minutes for the treatment.  Now that was something ‘good’ that I was happy to hear.  About 10 minutes into the procedure, I got a very strange taste in my mouth, but not so bad that I brought it to the nurses attention and it was helped by a sip or two of coffee.  About 15 minutes into the procedure I became extremely cold and had to ask for a blanked.  Neither of these were listed as side effects on the wonderful Google.  They brought me a very pre-warmed blanket and it was nice to get warm again.

At about the same time that I became cold, I started feeling a bit goofy… I can’t say really that I was light headed, but more of just feeling stupid.  I know that’s a strange way to express it, but that’s the way I felt… just a bit stupid.  That feeling continued from that point to… well… maybe a bit of it still lingering… or perhaps I’ve been dealing with cancer so long and had so many radiation treatments that I’m just becoming brainless.

I was truly grateful to have endured the session and been able to come home afterward.  I had to pick up my new thyroid medication (yes… that’s messed up too… possibly due to radiation as well) on the way home, but I was so very thankful to get home.  I was extremely tired already and running a bit of a low grade fever, so the rest of that day (Christmas Eve) was pretty well wasted… as was the next day.  Now I’m into the third day and still very fatigued feeling, running a bit of fever most of the day while worsening at night.  The pain levels have increased, particularly in the upper right side of the chest around to the side of the chest wall beneath the arm.  I get very light headed whenever I get up from sitting or from lying down or stooping or any other position that I shouldn’t be in.  I have to find the nearest place to sit down quickly or I’ll be horizontal in the floor.  Not a pleasant feeling at all.  I haven’t been very active in several years, but this is becoming quite ridiculous.

I’m hopeful that I will feel like editing and posting the journal entry I have waiting in the files of the more emotional and frustrating consequences of attempting to live with a deadly disease.  It might not please too many who wander here… but it will be good for me to let it out… if you know what I mean.

Today… If I can find the energy to make the walk to the car and then walk inside the clinic… it’s off to the cardiologist so that I can give him something to sit at the computer and grunt about.  I’m not sure why I’m even going.

Old Shoe

A most beautiful day to all of you… stay well!

Michael33

Pondering Consequences

Oliver 2

Well… where to begin?  I suppose this update should include the worsening of symptoms.  I won’t go into detail, but I’m sure most of you can figure those out from previous posts.  The oncology doc called on Monday, sounding a bit excited about the results from the whatever test she was having done to see if I might qualify for immunotherapy.  I met with her on Thursday and as it turns out… I do.  She sort of explained the process, touched lightly on the side effects and said that as soon as they get the insurance to approve the treatment, we would get started.  She then turned me over to a nurse practitioner who supposedly was going to explain it all to me in detail.  She did not.  She had me sign a consent form and turned me over to another nurse to show me around the area where the torture… umm… I mean treatment… will be done.  

What I needed here was time to think.  They were all very anxious to get started but I was not.  I thought that I would have at least a week or so to think about it all while they dealt with the insurance.  I was wrong again.  They called the same day (Thursday) and said that they had received the approval to start.  They wanted to start on Monday.  I did not.  I told them I had a busy appointment schedule that week (at least partially true… but they don’t really seem to understand… “I want to take some time and think about it”) and asked that we start the following week.  Reluctantly… they agreed.  They then tried to give me a late afternoon appointment.  I refused to take it because I do so poorly in the afternoons and I didn’t want to start this process already feeling poorly.  They reluctantly agreed to give me a morning appointment… told me that the actual dose of meds they will be giving me will take about 30 minutes.  I was excited about that part until… until they started telling me that the ones administering the meds… worked all over the hospital and it depended on how busy they were and that the pharmacy sometimes took a very long time to get the medicine down to them and… and… and… in other words… I would be there for hours… waiting.  My first clue was a rather full waiting room in the treatment area when they were showing me around. 

Okay… none of that is good for business nor for my patience.  If they think that I am going to sit there for hours for a thirty minute treatment without complaining or…. perhaps getting up and going home and telling them to call me when they find the time to treat a dying cancer patient… they would be thinking incorrectly.  That’s just not the right way to treat seriously ill patients.    Another thing wrong with the medical profession… none of them want to hire enough staff to properly care for the patients… but they sure want to keep those patients coming in with their money and their insurance cards.  It’s just like calling Medicare or an insurance company or even a medical care facility when you hear… “Your call is important to us…”  now… if you’ll just stay on the line for the next three hours we might take your call or we might just disconnect you and allow you to start all over… or maybe get so frustrated that you won’t call us back at all.

I don’t really feel like getting deep into the… what’s wrong with the medical profession or about the cost of it all today and I’m sure some of you will be thankful for me omitting my blather of all that.  I will however complain a bit about palliative care.  I asked my oncologist if it was necessary for me to go to palliative care and she replied by saying that “we work as a team.”  I suppose that meant that she wanted me to continue to see them.  So… I went yesterday to see the morticians… umm… I mean the palliative care folks.  I was there for more than an hour and a half and all they did was ask a million questions that I have already answered at the previous appointment and then they prescribed some cough medicine.  What?  I don’t do cough medicine.  Ever!  Of course it will most likely be a very long time before I receive it any way since they are attempting to get it through the VA.  Good luck with that one.  Oh… the nurse came back in the room about fifteen minutes after completing all of her tasks with me… shut the door very quietly… and in a soft, almost whispering voice… scolded me for not returning my advance directive to them… dated and signed and witnessed.  I don’t have to see them again until February… which may already be past my expiration date.  Time will tell…

Tick…………………………… Tock…………………………….

The immunotherapy drug they want to give me is called Keytruda.  It’s supposed to be the best choice for the kind of cancer I have.  If you Google the drug, the first thing you see on the official site is this:

Important Safety Information about KEYTRUDA

KEYTRUDA is a medicine that may treat certain cancers by working with your immune system. KEYTRUDA can cause your immune system to attack normal organs and tissues in any area of your body and can affect the way they work. These problems can sometimes become severe or life-threatening and can lead to death. These problems may happen any time during treatment or even after your treatment has ended.

Well… that’s really encouraging, isn’t it?  Then it goes on to give many, many more side effects, most of which are quite severe.

I’m pondering here….

I need time to think about it all.

They wanted to have a port put in my upper chest or neck to administer the drug.

No!  I mean… hell no!

They said they will attempt to administer it by IV but they often have problems with that.

I need time to think… though there are those who think that I should just blindly follow their little set plan of attack like a good little lamb.  I’m not feeling much like being a good little lamb at the moment… so they can forget that.

So… I’m going to go ponder… but while I ponder… I’ll be wishing you all a most beautiful day… and VERY GOOD HEALTH!

Michael33

An Unpleasant Post

The results of the biopsy are in and… just as I expected… the sample was diagnosed as squamous cell carcinoma.  Duh!  I thought all along that the biopsy was an unnecessary invasion, but the docs insisted that they needed proof.  Well now they have their proof.  I suppose what bothers me the most is that this biopsy was performed on a subpleural nodule, which means somewhere between the pleura and the chest wall… in other words… outside the lung.  I don’t have a good feeling about that part of it at all.  Up to this point, all the nodules were found in association with the lung with the exception of the subcarina.  Now it seems that it is just starting to roam around inside me. 

That first paragraph is from a journal entry I had started a few days ago but hadn’t posted.  At that time I hadn’t been to see the doc to review the biopsy report.  Let me just say that I suppose that Wednesday was a day of reckoning for me.  A day of facing the realities of life and death.  A day where one’s mortality is cast in front of their face with eyes wide open.  A day where the medical profession made a valiant attempt to remove the slightest bit of “hope” from my being.

Here are the words of my doc… “You have advanced cancer… stage four… and there is no cure.”

Wow!  Thanks doc… I needed that on this beautiful Wednesday morning… and how is your day?  What response can a patient possibly make to those words… ‘there is no cure’?  So what do I do now doc… take care of it before the suffering gets so bad that I lose the ability to determine my own fate?  Should I go out this very moment and rent that 1966 Ford Thunderbird convertible to drive off a cliff like Thelma and Louise?  Is it time to order that wing suit and head out for the nearest 6000 foot cliff to fly off of?  What now doc?  What?  Wait another three weeks for test results on the biopsy material to be sent off, to determine if I qualify for immunotherapy?  Oh… sure doc… I’ve got all the time in the world to wait.

Tick…………………………… Tock…………………………..

I’m having a brain scan next week… I suppose it is to see if I still have a brain.  I’ve wondered if they ever get negative results.  I hope I can obtain a disc to view at home like I do with the PET scans.  It will be a new learning experience and it seems that learning just never gets old… even if it involves terrible medical prognosis.  I love to explore… I’m just a little slower at it now than I used to be.

If gross facts bother you… don’t read past this point…

As of this morning… I’m coughing up blood with clots.  No… no one needs to tell me that this is not a good thing.  My doc asked if I was and I told her no, because at that time… I was not.  Today… I am.  If I call them and tell them, I suppose they would just tell me to go to the hospital.  I am not.  I’m going to “hope” that it stops.

Wishing you all a most beautiful day.

Michael33 

Biopsy uPdAtE

Biopsy and Pulmonary doc update…

Last week was quite interesting.  I saw the pulmonary doc and got extremely good explanations of the history of my cancer and what was causing what.  All of which she showed me on the computer in living color.  First of all, I learned why my symptoms were worsening.  The tumor in the hilum is pressing against the bronchial tubes causing me to cough more and large amounts of fluid buildup in the pleura between the lung and the lining of the chest, even though she had attempted to drain as much fluid as possible when she did the first… unsuccessful biopsy.  There is evidently a great amount of fluid still lingering.

Since the first biopsy failed to indicate the type of cancer… just as I suspected would be the results… I am now supposed to be going to have a second biopsy, one more involved than the first and with a larger needle… with another attempt to drain more fluid from the pleural areas… along with a greater chance for the lung to collapse.  I’m not looking forward to it at all, mostly because of my heart.  With coronary artery disease, high grade native vessel disease, numerous arrhythmias, an occasional A-Fib, and an electrical impulse that has relocated itself to the lower center of my heart where, upon occasion… fires in the wrong direction… causing the chambers to beat out of sync… I’m a bit concerned, knowing that a collapsed lung puts pressure on the heart and limits blood flow to it.  I hope that the doc that will be doing the procedure is just as concerned.  I have my doubts.  Actually… I doubt that he is even aware of the condition of my heart… or the fact that there are already two areas of partial collapse in that very lung.  Could be an interesting day.

I’m told by the oncologist that we ‘must’ find out what kind of cancer is there in order to know how to determine treatment.  I’m willing to bet that there’s a 99.9% chance that it is squamous cell carcinoma just like in the lymph nodes of the neck.  Is it all worth the risk?  I’m not at all sure… however… it is becoming more and more difficult to breathe.

So… once again… time will tell….

Tick……………………………Tock……………………………

Thank you all for your thoughts, your prayers, your hugs and your well wishes.  I’m putting them all to very good use.

Wishing you all a most beautiful day!

Michael33

 

Palliative care/Hospice… Wait… What?

Wait... What

(((Caution:  a naughty word lingers amongst the others… but remember… this is a journal and sometimes naughty words are definitely appropriate)))

I decided to keep my appointment with Palliative Care, although it was against my better judgement and especially since it was presented to me as if it was purely pain management.  What did I find when I got there?  Very friendly, kind, overly personable folks that dealt with me as if I was there to arrange a funeral.  I was not.  They wanted to prescribe opioids for pain.  I did not want them.  They had few alternatives, but ended up prescribing an anti-inflammatory… reluctantly.  They then sent the prescription to the wrong VA source that would have never filled the prescription and never notified me of the mistake.  I was asked about fifteen different questions about being depressed.  How many times does one have to tell another… I’m not fucking depressed… so please stop asking me before you cause me to become depressed. 

They wanted to talk about advanced directives and whether or not I wanted to be resuscitated, if I wanted chest compressions or not, and when I indicated that I might consider initial, short term chest compressions… they said with pronounced assurance…  that my bones would break in my chest from the force of the compressions, especially the sternum where it had been separated for heart surgery… and …”the crunching sound would be horrible.”  Really???  Horrible for who?  The person doing the compressions?  After all… if I needed chest compressions… I most likely would be unconscious and I seriously doubt that my hearing would be at its finest in that moment.  I think she was worried that she might have to be the one to do them.  So… if that’s the case… why ask in the first place.   

It was all just a wonderful experience.  As I said in a previous post… I feel as though I’ve become an honorary member of the walking dead.  Why can’t they treat patients as if they were going to improve… perhaps beat cancer altogether… and live another few years without pain?  Why not offer them “HOPE”?  Why is that so wrong?

After arriving at home, I reviewed the paper work they provided, including the medication… that’s when I discovered that they had Fax’d it to the wrong VA facility after I had carefully explained where to send it along with phone numbers with extensions, my VA primary care doctor’s name and the person that they should actually contact there that would take care of it.  The prescription also indicated that I would pick up the prescription at a facility in a completely different city.  Really?  Am I already seeing incompetence at Palliative Care?

The following day I had to go to the local VA for blood work.  That actually went remarkably well.  After that, I proceeded to the desk after being told that I needed to come in and see my team’s nurse to get my new medication straightened out.  Fifty minutes later, I finally got to see the nurse and explain the mix up on getting my new medication.  She assured me that she would straighten it out, have it sent ‘overnight’ and everything would be wonderful.  As of this date, that overnight delivery has taken eight days and I still haven’t received the meds.  The VA at its finest. 

I had a one day reprieve to take care of errands etc. before I went for the needle biopsy with a new pulmonary doc which was definitely a unique experience.  She deadened the skin and then inserted a rather large needle into the right side of my back between the ribs.  I will say… I found it to be quite a painful event.  Four large vials were filled with fluid that she drained from the pleura of the lung.  She continued to draw fluid from the same area after the vials were filled.  When she removed the needle and placed a large bandaid over the puncture, I asked how much fluid she withdrew.  I was totally surprised.  She held up a plastic bag and it contained somewhere between a third and a half of a gallon of bloody fluid.  She then said that I should be able to breathe a little better after a while. 

Since that time, my lung is making more noise than before, feeling as though it is popping or something 10 or 12 times with each deep breath.  My chest and side are sore in strange places, I’m actually not breathing any better and my cough has gotten considerably worse.  However… I am happy that there has been so much fluid removed from my lung lining.  The chest xray following the removal of fluid indicated ‘moderate pleural effusion’… so… there’s more there in different locations and the lower lobe has a significant amount as well… I wish that could all be removed.  I’m not real anxious to find out how expensive that fluid removal will be.

I have a follow up with the oncologist next week as well as with the pulmonary doc.  Supposedly, I will find out just what kind of cancer is lurking there.  My guess is that it is the same that was found in the lymph node of the neck several years ago… squamous cell… but I also have some concern that they may not find out anything from testing the fluid they removed, which means they will want to do something else to make that determination.  I do not.   

I have many questions for the oncologist at the next appointment, but one question will be a little different than the others… I will ask the oncologist this question (off the record)… and see if I get an answer: “What could have been done or “should” have been done last April after the PET scan indicated that the tumors were still present and active… that might have prevented the spread of the disease?  It’s going on seven months since that time and still… nothing has been done to slow the progress of the disease except hurry up and wait for this test and that test that  so far… has offered no new conclusive results.   

Time will tell…

Tick…………………………… Tock……………………………

Hug someone you care about…

Wishing you all a most beautiful day!

Michael33

 

nEw dOc uPdAtE

I suppose I’m virtually lost.  Wednesday’s doctor’s visit was perhaps the most devastating that I have encountered.  First… let me say that my new doctor seems to be the perfect caring soul that I have needed.  I do however, reserve the right to change my mind.  She was extremely knowledgeable concerning my PET scan of three weeks ago.  I had suspected that, like most docs I have encountered in recent years, didn’t have a clue about what was going on until ten minutes before they came into the exam room, checking results of tests just before they see you and in some cases, after they enter the room and log on to their computers.  She evidently had been studying all of it for some time.  She knew exactly where the largest tumor was and where the many new ones were loitering.

I didn’t like what she had to say however.  How could I?  I have no recording or notes from the appointment except what lingers in my head, but she was profoundly and personally direct in her presentation of the facts.  I believe she fully intended for me to pay close attention to what she was about to tell me.

Here’s how that went:

She rolled the stool she was sitting on across the floor till she was directly in front of me.  She leaned forward, placing her face about six to eight inches from mine… looked me directly in the eyes and said: 
“The tumor in your lung is very large.”  As she said this, she placed her hand against the place in my chest where the tumor is located, positioning her hand and fingers as if she was holding a baseball… perhaps something a bit larger… then a moment of silence while she looked into my eyes… maybe my soul.  She then took her fingers and gently started touching other areas of my chest, indicating where numerous other tumors were now located.  Then, she touched the side of my ribs in several locations and said, “These that have developed in the pleural areas indicate that the cancer is extremely advanced.”

Wow… I always wanted a doctor that would tell it like it is, but this was a harsh reality that was difficult to accept.  How did this get so out of hand?   I knew from the report and viewing the disc myself that I was perhaps in deeper trouble than I have previously been, but to hear it told to me like that was… well… still a bit of a shock.

She then leaned back a bit and told me that she understood my concerns about chemo due to my severe heart and vascular condition… although there were still things about my heart that she was unaware of, mainly due to my ignorance of forgetting to tell her… like the fact that the electrical impulse point in my heart has relocated itself to a very unusual position and sometimes fires backwards… causing the chambers to fire out of sequence.  Yes… I know that’s weird and yes… it is not a pleasant feeling when it happens.

She then recommended… ummm… maybe it wasn’t exactly a recommendation, but more of a command… that I get a biopsy to determine for sure the type of cancer, although everyone before her had assumed that the tumors in the lung, hilum and subcarina were metastasized from the squamous cells first found in the lymph nodes of the neck.  She said that we have to know specifics in order to consider immunotherapy because the drugs are specific to the type of cancer. 

She also said that I had to have a brain scan to see if the cancer had spread to my brain because it likes to travel (my first impulse was to start talking funny, slurring my words and tell her that I couldn’t possibly have brain cancer… but I quickly decided that might not be the best choice I could make at this moment)… and that I would need to attend the pain clinic because of what I’ve been experiencing as of late… evidently… cancer related, though I had suspected that… as well as pinched nerves in the neck and or shoulder.

After all of that… which had me dumbfounded… she said this… if we do this… we may be able to extend your life for six months… ‘pause’… maybe a year… ‘longer pause’… maybe two.

Now is the time that I must consider both sides of this situation… very seriously.  Do I really want to extend my life for six months… maybe a little longer… by undergoing test after test and God only knows how many treatments with medications that are most likely going to make me far weaker than I already am… most like causing nausea and other crap like that… possibly causing more heart trouble than my un-normal heart already experiences… day after day of those six months?  If it wasn’t for those who care about me… I already know the answer.  But I must consider how they feel about this as well.  It’s not an easy decision.

Whew!  I’m worn out already and haven’t even gotten the appointments as yet.  I suppose I spent the remainder of the day in a bit of a disgruntled stupor.  Yeah… I’m not sure of the definition of disgruntled stupor, but I’m fairly certain that I was in one.  Today…?  Well… I’m not real sure of my mental state of being.  I do know that I still have my sense of humor, so things aren’t all bad.  Although, there are some who don’t always  appreciate my un-normal sense of humor, but there aren’t many who haven’t pretty much abandoned the one who is ill at this point anyway, so I’m sure they won’t be in any way offended by my sarcasm or the fact that I often laugh at all the wrong moments. 

I’m not going to make this journal entry as long as the last.  I do know that no one really enjoys reading long posts about someone who is ill or anything else for that matter. 

I wish all of you well-ness, happiness, and a most beautiful day.

Oops…

Update to the update:

I now have appointments for the biopsy, blood work for the VA and to see a Palliative Care doc all next week.  Yummy… Just what my little heart desires.

I had to look up Palliative care… I didn’t even know what it was… then I noticed that the docs of that department are all palliative care and hospice.  Hospice?   Really?  Are they trying to tell me something?

Michael33