August 2019 uPdAtE

Bella

Bella really is a kitty…
She just “thinks” she’s a bunny.

I suppose it is time for an update.  There have been some changes in my health ( ⇓ ), my quality of life ( ⇓ ), and possibly… still to be determined… in the health care I am receiving… (⇑).  I know that the upward arrow will come as a shock to many of you as it has to me.  Of course, there is no guarantee, so with time… perhaps I will be able to confirm that a change for the better may be coming… However… it does have its potential problems.

Last time I saw my VA doc I gave him the reports I had from the PET scans in December 2018 and April 2019 indicating that the tumors were still around and sadly… still active along with three new nodules in the lower lining of the right lung… also currently active and growing.  The doc decided that he could refer me to my current radiation oncologist and the VA insurance would cover it.  I was totally shocked after all I had been through previously attempting to get them to do that very thing and receiving no help what so ever.  Now… thousands of dollars later… they decide to help….. maybe.

Of course, immediately following this wonderful news… my radiation oncologist quit.  So… there went that idea.  I called the VA doc to see if they could work me in sometime in the near future to explain the situation along with the fact that my symptoms were worsening.  I thought that… being my “primary care” physician that he might have some ideas about something that might ease the symptoms.  He didn’t want to see me… which I thought was strange, but perhaps not strange for the VA.   Perhaps my symptoms have surpassed his capabilities.  He did, however, refer me to see a local oncologist.  Sometimes, I feel like there are some docs that would just rather not get involved in my health care.  Can’t say I really blame them.  I’m… umm… un-normal.  I did not get to pick which doc I will see but did get to select the location.

I was then contacted by a very polite (seeming to be caring) VA representative of VA Community Care… who is now… supposedly… arranging appointments with an oncologist.  Well… let me clarify that… the VA doc referred me to the VA Community Care who then referred me to an insurance company.  Hmm… and they wonder why I’m suspicious of getting anything done.  I’ve been through the oncologist route before and wasn’t particularly happy with the results, but I will once again attempt to wander through their muck.

I know the first thing they’ll want to do is either surgery or chemo… and that will be a big NOPE from me.  I’m weak enough already and chemo would be critical in that respect… (radiation was bad enough as far as weakness goes)… and my cardiologist has long ago warned me about surgery with my heart in the condition it is in.  They will argue with me and attempt to persuade me into doing something foolish while my little inner voice keeps saying… “Don’t do it!”  If they hit me with the ‘it’s the only way you will survive this time’ statement… well… I might have to take some time and ponder for a while… but I’ve beat the odds so many times now… I’m kind of like the old athlete that says to himself… I know I should retire, but just one more winning season would be nice.

As yet, I have not heard from the appointment schedulers or know which doc I’ll be seeing, but I expect that all to happen within the coming week.  Although, they assured me that they would have an appointment scheduled for me within 8 to 14 days.  Seven of those days have already passed without a word.

The symptoms have not changed since my July 2019 update, so I won’t trouble you here with that information.

Thank you all for your thoughts, prayers and warm hugs…

A most beautiful day to you all…

Michael33

3 thoughts on “August 2019 uPdAtE

  1. Here’s hoping the red tape and patient shuffling gets straightened out soon & you can connect with the right person who will help you heal, both physically & mentally (I can’t imagine the strain you’re under dealing with all this). If my well-wishes worked better, this very afternoon you’d be taking large clear breaths like a deep-sea scuba diver, doing pain-free cartwheels like a gymnist, & your eyes would sparkle like a playful kitten. 🙂 Praying for better days in the near future.

    Like

    • Oh Ms. Merry Hearts… thank you so very much. Your well-wishes work most beautifully on both my physical and mental attitude. After all… this comment of yours has reminded me that large clear deep breaths are exactly what I need to be doing to strengthen the lungs and help to clear the fluid… my eyes are smiling along side the playful kitten that is attempting to help me type this… and… well… I might be better off not attempting the cartwheels. It would just scare the kitties…
      Thank yo so very much for making me smile…

      Liked by 1 person

      • Yeah, I have to leave the cartwheels alone myself. Between the O-L-D Syndrome I seem to be developing & the fact that I’ve been on crutches for a month, I’d better behave! But, I’ll take some extra deep cleansing breaths this evening & send good wishes your way. 🙂

        Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s